a profile

Profile –
: the shape of a head or face that is seen or drawn from the side
: the shape of something that is seen against a background
: a brief written description that provides information about someone or something


My mind wonders: Is this portrait a profile of Sophie or is this a profile of Trisomy 21? Both, all of it, I remind myself. I map Sophie, a real person.  I map Trisomy 21, a genetic disorder. I talk a lot about the science behind my work. Today I hope to give some attention to Sophie and to some drawing elements as well.

A profile of Sophie
I study photos of Sophie all summer. I ask lots of questions and read more information than I can recall. I have a niece named Sofia, I know the name means wisdom. I meet Sophie days after her 13th birthday. Summer break is ending and this week she begins middle school. Every time I come to the work on paper, I recall one of the last things she indicates at our initial visit. She’s a teenage girl and she wants to be just like every other teenager. She wishes she didn’t have Down syndrome. I can’t help but think about this every time I come to my drawing table.

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Portrait of Sophie, Side view

About drawing
When I begin, I can’t know how much I will enjoy working out this composition.  I practice everything I teach my students. I look closely and consider how to express best everything about Sophie: the defining contour and variety of texture within her complex structure. BTW, all structure in its uniqueness is complex. I don’t add anatomy to these portraits for a good while because I like how the simpler sketch expresses some personality. I photograph the process to hold these aspects of Sophie.

I work on paper. These details are in pencil – graphite and color, regular and water-soluble. I like this part so much that for a moment I consider teaching only pencil drawing. I laugh at the thought because anyone who’s studied with me knows they never see any kind of pencil in my class, much less draw with one.

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Profile of Trisomy 21
Down syndrome is a genetic condition that causes intellectual disability. I plan to include a brain from the start. An interesting find is the connection between DS and Alzheimer’s. I didn’t know early onset of 
dementia may be a factor in DS. I ask an MD friend to tell me the difference between Alzheimer’s and dementia. None, he responds. They basically mean the same thing. 

I am most familiar with the facial characteristics of DS. I observe some of the common traits of a smaller and flatter nose (bridge) and forehead. I am not convinced there is much of an upward slant to Sophie’s eyes, at least not in the photos I shoot. I don’t see epicanthal folds nor do I note smaller ears. I have to wonder if some people outgrow some qualities. Individuals are unique, I hold steady to this thought.

sketch

Portrait of Sophie

Sophie shows me her fissured tongue (and I love drawing it). I don’t find this as a common characteristic but I learn big sister Annabelle researches the condition and in this case, it is DS related. Looking at drawings of a skull, I learn the mouth and jaw bone are smaller and palette narrower which cause the tongue to appear large. As I lightly lay in anatomy, I consider the smaller than average nasal passage ways which can make breathing difficult.

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Because Sophie mentions 2 heart surgeries, I initially consider 2 hearts in the composition. I reconsider when I find an EKG related to Endocardial-Cushion Defect. I already have the heart in the drawing, this element refers to that and is not only an expressive life-line but informative of DS as well.

All of my work is education based, this drawing is no different. I have a new respect for Science and all that it provides for us. But I do not let go of my respect of the Subtle Body and its energy, you know…the part about spirit and its fulfillment. I clean up at the end of each drawing session and leave my studio for the day and I can’t help but wonder if Sophie will live the life of a typical teenager. Each individual is unique. Hold steady that thought.

A side note
Title of artwork. A Profile of. A Portrait of. One more thing to show itself in time.

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