a profile

Profile –
: the shape of a head or face that is seen or drawn from the side
: the shape of something that is seen against a background
: a brief written description that provides information about someone or something


My mind wonders: Is this portrait a profile of Sophie or is this a profile of Trisomy 21? Both, all of it, I remind myself. I map Sophie, a real person.  I map Trisomy 21, a genetic disorder. I talk a lot about the science behind my work. Today I hope to give some attention to Sophie and to some drawing elements as well.

A profile of Sophie
I study photos of Sophie all summer. I ask lots of questions and read more information than I can recall. I have a niece named Sofia, I know the name means wisdom. I meet Sophie days after her 13th birthday. Summer break is ending and this week she begins middle school. Every time I come to the work on paper, I recall one of the last things she indicates at our initial visit. She’s a teenage girl and she wants to be just like every other teenager. She wishes she didn’t have Down syndrome. I can’t help but think about this every time I come to my drawing table.

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Portrait of Sophie, Side view

About drawing
When I begin, I can’t know how much I will enjoy working out this composition.  I practice everything I teach my students. I look closely and consider how to express best everything about Sophie: the defining contour and variety of texture within her complex structure. BTW, all structure in its uniqueness is complex. I don’t add anatomy to these portraits for a good while because I like how the simpler sketch expresses some personality. I photograph the process to hold these aspects of Sophie.

I work on paper. These details are in pencil – graphite and color, regular and water-soluble. I like this part so much that for a moment I consider teaching only pencil drawing. I laugh at the thought because anyone who’s studied with me knows they never see any kind of pencil in my class, much less draw with one.

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Profile of Trisomy 21
Down syndrome is a genetic condition that causes intellectual disability. I plan to include a brain from the start. An interesting find is the connection between DS and Alzheimer’s. I didn’t know early onset of 
dementia may be a factor in DS. I ask an MD friend to tell me the difference between Alzheimer’s and dementia. None, he responds. They basically mean the same thing. 

I am most familiar with the facial characteristics of DS. I observe some of the common traits of a smaller and flatter nose (bridge) and forehead. I am not convinced there is much of an upward slant to Sophie’s eyes, at least not in the photos I shoot. I don’t see epicanthal folds nor do I note smaller ears. I have to wonder if some people outgrow some qualities. Individuals are unique, I hold steady to this thought.

sketch

Portrait of Sophie

Sophie shows me her fissured tongue (and I love drawing it). I don’t find this as a common characteristic but I learn big sister Annabelle researches the condition and in this case, it is DS related. Looking at drawings of a skull, I learn the mouth and jaw bone are smaller and palette narrower which cause the tongue to appear large. As I lightly lay in anatomy, I consider the smaller than average nasal passage ways which can make breathing difficult.

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Because Sophie mentions 2 heart surgeries, I initially consider 2 hearts in the composition. I reconsider when I find an EKG related to Endocardial-Cushion Defect. I already have the heart in the drawing, this element refers to that and is not only an expressive life-line but informative of DS as well.

All of my work is education based, this drawing is no different. I have a new respect for Science and all that it provides for us. But I do not let go of my respect of the Subtle Body and its energy, you know…the part about spirit and its fulfillment. I clean up at the end of each drawing session and leave my studio for the day and I can’t help but wonder if Sophie will live the life of a typical teenager. Each individual is unique. Hold steady that thought.

A side note
Title of artwork. A Profile of. A Portrait of. One more thing to show itself in time.

a heart in situ

Amy Silverman contacts me in February. She wants to have coffee and talk about our work and how it intersects. Our work intersects? Amy is managing editor of the Phoenix New Times.

We never meet for coffee though we keep in contact and on May 1st she comes to my studio.  Do you mind if I record our conversation? I’m impressed. Why don’t I think to do that when I want to remember things? Clearly we are trained different. We do a little catch up and then she tells me she’s written a book. She says it has science in it. We talk about my drawings and about how I write about my work. She refers to what I do as reporting. One thing leads to another and I make a plan to attend the upcoming book launch.

My Heart Can’t Even Believe It, A story about science, love, and Down syndrome is a story about her daughter Sophie. It’s actually about all of her family but in particular it’s about her youngest child born with Down syndrome.

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Amy tells the story of how her and her husband handle the birth of Sophie, and the life stuff that follows. She goes through medical details as they present themselves and as she tries to understand Down syndrome, also known as Trisomy 21.

She’s descriptive in a way that catches my attention. She takes what is complex science and makes it easier to understand (not easy, just easier). Her words have a visual impact on me. Every time she describes to the reader a physical symptom and/or procedure, my mind’s eye sees it (wants to see it).

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Amy and I first meet in the studio on May 1 and within a month (June 1st) I layout Sophie. I am working on a painting of my nephews daughter, my niece Pilar, who is 5. Because I have much to learn, I decide they’re good back and forth studies. I don’t have children and all of this is a type of learning for me. What is normal human growth and development? Do I use the word normal?  Will I use the words typical and atypical? Do I even use any of these words when I talk about a drawing?

While Amy writes about the more common features of Down syndrome and notes her daughter looks like other Down syndrome children more than like her own family, I see it different. Sophie is totally unique to my eyes. I look. And I have to look again.  I bookmark many things. As I work I go back to the book, to research material and to my notes. As with all my work – you learn as I learn.

Amy connects me with the Co-Director of the Pediatric Down Syndrome Clinic at Phoenix Children’s Hospital who generously makes herself available to me. I contact a research scientist who knows cell biology well. And I talk to a cardiologist who gifts me a couple of his medical illustration books by Dr. Frank Netter. One is about the thorax in general, while the other is about the heart in particular and includes the Atrioventricular Septal Defect that Amy describes in the early part of her book as a hole in her (daughter’s) heart. The book refers to it as Endocardial-Cushion Defect.

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The chapter’s name (the words above to the right) is where I get the title to this post. I have drawn the contour of Sophie’s complete body (studio shot in post). And as I go from part to part I can’t help but wonder how the 21st chromosome affects each and every one of her organs. Down syndrome associates to DNA (our blueprint) and an extra 21st chromosome, it is also called Trisomy 21. Right now – A portrait of Sophie, studying Trisomy 21 – is the working title.

I know the composition will include 2 hearts because the day I meet Sophie she tells me about her heart surgery – both of them. And she tells me about her feeding tube.

Thanks Amy, for bringing your work to my attention. And thanks Sophie for agreeing to let me map you. And thanks for the blue paintbrush you gifted me (If my memory is correct Sophie’s collection includes at least 300 paintbrushes). I refer to the color of the brush as turquoise (my favorite color) and Sophie corrects me, It’s more like aqua! She takes her mom’s cell phone and pulls up a color swatch. It’s true, the brush is aqua.

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Hey Sophie, do you know energetically, that particular blue is the color of expression and is found in the throat? It is.

For more about Amy and her book → My Heart Can’t Even Believe It.