memory lounge

I spend Friday afternoon at SMoCA facilitating a workshop for Memory Lounge, an arts program in Scottsdale organized for people living with moderate stages of dementia-related illness and their care partners.

I walk into the studio, happy to see Laura, Curator of Education and Kelly, docent and workshop helper. We greet each other warmly. They’ve both helped me to prepare for today.

Participants, having eaten lunch together, arrive for an afternoon of art. Laura, greets the talkative group as they begin to fill the studio. She makes general introductions.

A visit to one of the current exhibitions is a part of the afternoon plan and soon with Kelly as lead, we head to the gallery.

Everyone takes time to look at the art work. Kelly is a natural as she informs the group about (the extraordinary) Cuban Printmaker, Belkis Ayón.

We return to the studio. I introduce myself and clarify my area of interest in human anatomy. I show examples of what we’ll be making – Milagros, I explain, are like...are small votive offerings, in the form of a body part – yes we’re making body parts! Think charm or amulet.

I feel a hesitation to speak because we’re here to have fun. I don’t want to explain too much.

I explain general idea and intention. Before I know it everyone is drawing and moving at their own personal pace. Some people get right to work (like this gentleman ↓ below, who is also the first one to finish) while others talk through their plan and spend time deciding form and color.

I enjoy seeing one very colorful ↑ ear emerge. As I comment, the participant points to her husband’s ear. He sits next to her ↓ drawing his own hand.

Three hours fly. Everyone will leave the Memory Lounge with a small memento holding  the afternoon we create together.

I wish I had a recorder to hold some of the reaction and response. The laughter I hear along with fragments of comments and sentences are wonderful.

A daughter’s expression (there with her father) –  “Slow deep inhale in and slow exhale out. Just breath.”

I See Heart

The goals of Memory Lounge : Social interaction, living in the moment and engaging in the arts.

#MakingCommunity #MakingMilagros


This project arises from an August afternoon I spend with my mother (who is then having a heart procedure). She is caregiver to my father who lives with Alzheimer’s Disease.

I spent this last summer researching Dementia and Alzheimer’s.
#support #education #cure.

present and re-present

Alzheimer’s disease (AD), the leading cause of neurodegenerative dementia associated with aging, affects over 5 million adults in the United States and is predicted to increase to 16 million affected by 2050. – Alzheimer’s Association 2017 


Looking at the PET scans  – I recognize his profile. This is my father.

Talking to my sister Mercedes, she reminds me how for years when one of us called out Dad! he’d yell  back, YO SOY EL SEÑOR MARTINEZ! 
I smile. I don’t ask if he still does this.

It’s natural when I make art to think about it as installation. I want some sense of a bigger picture. With this particular work, I imagine a small series of studies and words. Maybe the words are text (as marks) across a wall.

I ask mom, my 4 sisters and brother to jot down thoughts/words about dad, past or present, as I make a small scratchboard series of his PET scans.

Mercedes: His funny sayings – CON UN DIABLO!!

Dad never really cusses in front of us. My guess is this saying is his version of Damn it!

Elisa: He likes to play with words, he always has. Every time we pass a one-way sign or stop at a four-way stop sign he says…”un guey”. “Cuatro gueyes”.

Dad’s humor includes playing with words and the English and Spanish language. 

Elisa: He used to say grocerias for groceries. Now he says, narizona when we get to Arizona Street.

Elisa also sends recordings she’s made of some of their conversation. In one recording she asks dad about his sister Carmen, who died last month at the age of 99.

Elisa: How many years between you and Carmen?
Dad (who is 86): I don’t know, followed by a long pause, she was old enough to scold me.

Mercedes: He liked Gabriel-Garcia Marquez’s, Cien Años de Soledad.  He took us to the Plaza Theater to see 2001: A Space Odyssey when it first came out and Blazing Saddles and Young Frankenstein at Plaza…Jaws and Star Wars at Cielo Vista. 

I laugh because within minutes of Young Frankenstein starting, I saw in his face he’d  regretted it. Not a kid’s movie dad!

Mercedes: …summers and swimming, Washington Park and Armijo….with all the neighborhood kids.

Dad, for many years was a summer life-guard for the city summer recreation program. He took us to work with him every day, Monday to Friday (lucky mom). And along with us, he often did have many of the neighborhood kids piled into the station wagon.
He swears he taught me to swim. Maybe I didn’t pay attention. His mouth dropped when years later, as an adult, I told him about the afternoon I almost drowned at my best friends house.

Mercedes: He liked Yoga!

This comment brings back my 10-year old self, skipping over him as he holds Cobra Pose.

Mercedes: …candy apple red Alfa Romeo. Guayaberas. He taught me to make Gin and Tonics. He likes to eat :).

Gin and Tonics?!

Analissa’s memory takes her back to high school:  I went to the library to pick a book, I chose One Hundred Years of Solitude by Garcia-Marquez. He read it with me. He went on to read everything by him, took a class on the author and later magical realism. I thought that was cool – he made himself an expert just like that. I once went to play cello for a class he was taking. I forget the class, but I played the same program as Pablo Casals did at the Kennedy White House. I sensed he was proud.

Analissa (younger than the rest of us, never knew dad the lifeguard, but does know dad the swimmer):  I would go swimming with him, since I was a little girl. He taught me to swim. I have specific memories: his cadence and body movement and endurance – his swim bag and goggles, flip-flops and little shampoo bottles. The last time we went swimming I sensed it would be our last time at the pool together. So I stopped and just watched him swim the whole time.

…We once looked up the town he was in, in Germany, on Google Earth. It was exciting for both of us. He had 3 memories: The train station that would take him into town, the ‘biergarten’ where they would drink, and the cathedral where they’d go to church after drinking all night on Saturday, then back to the train station. We found all three of those things, they were still there.
Dad is funny. 

Chacho, my brother, notes John Nichols and the Milagro Beanfield War – When I read it, at Cathedral, he told me it was one of his favorite books.  He would read it at least once a year. He likes Hemingway. When I was reading For Whom the Bell Tolls he would tell me about it. He had the movie on VHS.
His favorite drink is Negra Modelo.

‘El Sapo High’…He says this every time we pass El Paso High School. 

Clearly Dad read a lot and – he suggested I read Cortázar’s Rayuela and also the English translation titled Hopscotch. The book had instructions in it on how to read it. Apparently it bounces from the past to the present. Instructions?! Too complicated dad!
It’s still on my list.

One of my sisters never responded and mom wasn’t sure what to say. She’s in the thick of it with taking care of dad.

As Artist-in-Residence, I focus on dementia and Alzheimer’s this summer.

I sit at my drawing table at the Tempe Center for the Arts, talking to people who come in and share their personal stories about how dementia touches their lives. I’ve connected with professionals on the issue. And last week a chemical engineer visiting the gallery talked to me about President Reagan, who died of Alzheimer’s. He was known to drink a coke a day. This chemical engineer, who spoke 5 languages, told me about a project he took in Japan shortly after graduating and consequently he never drinks out of aluminum cans if he can help it – only bottles for him.

…I know I want these small scratchboards bigger. I admit, this summer it sometimes feels odd to be working with new materials, mixing colors, and laying out ideas.

Raising awareness…my own and yours.


Tempe, AZ →  Dementia Friendly City
More → The Alzheimers Association
Special TIME Edition June 2018 → The Science of Alzheimers

Alzheimer’s and Brain Awareness Month

I spend the last few days isolating and drawing the regions of the brain.  The earlier studies I work last winter, the beautiful bones of the cranium, lay out for me basic information connecting to the brain. Knowing I will eventually focus on the organ, I certainly don’t know I’ll be focusing on dementia and Alzheimer’s this summer. I also don’t know, as I begin this study, June is Alzheimer’s and Brain Awareness Month.

I don’t have an outline for how to move through all this. I learn, I draw – I draw, I learn. I begin with basic groundwork.  I work out neurons and glia and now I look at the cerebrum and limbic system. I am looking for the hippocampus as it relates to Alzheimer’s.

I pause here to tell you the brain is beautiful and so full of complexity (form and pattern). I am lost in the labyrinth now.

I start by laying out regions of the cerebrum, using a slightly different color of blue for each area.

The Frontal Lobe in bright blue.

Occipital Lobe (in the back of the cerebrum)

Do you see the hippocampus (the center c-like ↑ structure) buried deep in the center of the image? It’s not highlighted yet.

Parietal Lobe – dark blue upper back

Note the white areas atop ↑ the brain identifying the motor and sensory strips. I leave them color free only to know where they are as I work – eventually I outline them in blue.

Temporal Lobe – center lower right area

As I draw I try to understand something about each area – so much to learn.

In general, the hippocampus processes declarative memories and spatial relationships. This is one of the first areas affected by Alzheimer’s disease. Patients begin to lose short-term memory and may also find it a challenge to follow directions.

Called the hippocampus, the organ is said to resemble a seahorse (from the Greek hippos is horse and campus is sea monster).  Living in the desert my whole life, I decide it resembles a Devil’s Claw seed pod.


A side note:
This morning I talk to Ryan, a roofer who is doing some work for us. He tells me about the Brain Injury Alliance of Arizona.  Apparently sometime back he sustained a brain injury from a biking accident. He informs me the average helmet lasts about 4 to 5 years and most people don’t think to replace their own. He explains with time the lining hardens.

The conversation is interesting because as I research dementia, I also learn the same defective Tau protein found in Alzheimer’s disease is identifiable in the neurons of athletes who have in earlier years sustained serious concussions.

This week I hear the brain being described as a gelatinous organ protected by a rigid bony skull. It does needs protection from impact and jarring.

I mention I didn’t know June is Alzheimer’s and Brain Awareness Month. I know it  and now you know it too.

draw, the art of curiosity and innovation

Artist-in-Residence studio spaces

One of three artist-in-residence, I will spend a couple of days, for the next 12 weeks, at the Tempe Center for the Arts (researching dementia and Alzheimer’s). They (we) set up our 3 studio spaces ↑. Mine includes a desk that resembles the one I have in my home studio. ↓

My studio area, and the beautiful braincase

Now to get used to working in a public space…

Arriving early, I decide to organize a blog post. My computer is not picking up wi-fi. Ahhh… I forgot the USB cable to connect my camera and computer. But hey, my camera works!

I enjoy looking closely at the work as I shoot details.

Ryan Carey

Beth Shook

Carolyn Lavender

Laura Tanner Graham

Christopher Jagmin

Mary Shindell

Matthew Dickson

Hyewon Yoon

Bobby Zokaites (Artist-in-Residence)

Kyllan Maney (Artist-in-Residence)

The gallery includes several art maker ↓ spaces.

Before the afternoon is over these women ↑ (who before entering the gallery were out enjoying Tempe Town Lake) walk over to my table. They want to talk about my work – the drawing of my father in particular. I gather they’re related: mother, daughter and grand-daughter. We talk about their family, aging and dementia. I also talk to a couple of other people including a friend who is an artist.

I drive home knowing we are all in this together. The connector is art.


We’re working things out. Hours subject to change until they’re not…
I’ll be in studio on Tuesday and possibly Thursday
Kyllan Maney considers Tuesday and Thursday or Saturday.
Bobby Zokaites plans for Wednesday and Saturday.

TCA has a drawing workshops scheduled almost every Saturday for the duration of the summer. More info →  draw: the art of curiosity and innovation
 

neurons and glia (and my father’s brain)

Are you in the neuron? Or is the neuron in you?


Steeped in the study of the human brain, I am in preparation for an artist residency at the Tempe Center for the Arts. Consequently I know my brain changes as I learn, while I draw, and even now as I write. I mean it is really changing.

And I guess I can say now my father’s brain is changing too. Dad’s been diagnosed with Alzheimer’s. For awhile I understand (more or less) he has dementia – I now know (more or less) he has Alzheimer’s. And because my father has Alzheimer’s (the most common form of dementia) I decide to focus this summer’s residency on both the healthy brain and the  brain with dementia.

Where to begin….
The residency calls for me to work at the Tempe Center for the Arts (I am 1 of 3 artists that will be in residence this summer).  I can’t help but consider the public. Actually I am always aware of the public, but more in the form of viewer (of the completed work) and not necessarily as part of the process. I will engage with visitors in a thoughtful manner.

While I’ve drawn many studies of the brain in the last few years, now I feel the need for a brain basics course (101). I consider the primary building blocks of the human brain – neurons and glia (neuralgia).  I spend days looking at imagery including the drawings of Santiago Ramon y Cajal (The Beautiful Brain).

I draw and paint a neuron↓.

Neuron Study

I draw glia ↓.  I didn’t know there’s a variety of glial cells!

These particular cells are key in maintaining homeostasis. I think of them as a sort of maintenance crew (though they’re more than that). While I’ve found different ratios, overall it seems glia outnumber neurons 10 to 1 (I’ve also read 6 to 1, 3.75 to 1).

Oligodentrocytes

Astrocyte

 

Microglial cell

I enjoy detailing the small preliminary study ↓ (not finished yet).
Note: At this point I better understand where abnormal plaques and tangles, as seen in Alzheimer’s, form.

This week my mother sends my father’s brain scans to me. The day the disc arrives, I pop it into my computer. I recognize my dad’s head and  profile. I manage to bring in (and change) the color of the basic black and white scans. I see them light up and they’re beautiful. There are 4 images, 1 rotates while 3 are static. I figure out how to move through layers of the brain. What am I looking at?  I sober up.

I recognize general areas of the brain though I don’t know how to read the particulars of the images. I hope to find someone who can help me make sense of things.


We’ll be installing in a couple of weeks…
Tempe Center for the Arts

The Gallery at TCA presents
draw: the art of curiosity and innovation
May 25-Sept 1
This interactive exhibition celebrates a wide variety of creative media, styles and techniques that incorporate drawing. The “draw” experience includes fine art displays by local artists, exploration stations for doodling and art making, live artist demonstrations and multiple workshop opportunities for all ages.

Meet Artists-in-Residence through Aug. 3
Kyllan Maney, Monica Aissa Martinez and Bobby Zokaites
 → for more info


Last month I had the privilege of spending an afternoon with Dr. Jay Braun, ASU Emeritus Professor of Psychology. We talked about the healthy brain and the Alzheimer’s brain. Exercise, he says, is the most important thing one can do to maintain a healthy brain.

I’m off for a run now…